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Hello world!

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    • Gareth Parry

      Keymaster

    • #3592

      Hi Nancy: There is no evidence that vitamins, minerals or any form of dietary supplement is of any use in hastening the recovery from GBS. In fact, some supplements, specifically vitamin B6 and zince, have been shown to cause nerve damage if taken in high doses or for long periods of time. A normal healthy diet contains everything that you need so you do not need to waste your money on the many products that have flooded the market with a complete lack of any evidence of benefit.

      in reply to: Supplements

    • Gareth Parry

      Keymaster

    • #3588

      Thanks for the positive feedback. Hope the speed bump is successfully negotiated.

      in reply to: Gratitude

    • Gareth Parry

      Keymaster

    • #3558

      Tough questions. Medical care is always the fine art of bal;ancing risk against benefit. The problem for you is that any advice is given with a shortage of data on which to base it. A couple of points need to be made. First, you developed GBS following your 3rd COVID vaccine but that does not mean that the vaccine caused the GBS. It may have but the evidence that any of the COVID vaccines cause GBS is very sparse. Nonetheless, in my opinion, the risk of getting GBS if you have a further COVID vaccination, although tiny, probably outweighs any benefit that you would receive from getting further boosters since you are already well vaccinated. Exemption from vaccine mandates is a decision made by the MoH, not by any individual doctor but if I was asked for an opinion on your case I would recommend against having further boosters. The risk of getting GBS following COVID infection is also very low but there have been a number of GBS cases that have occurred within 6 weeks of getting COVID infection. There is no data to tell us whether having had GBS following COVID vaccination increases your risk of getting GBS if you get COVID. We can say that recurrent GBS is very rare, no matter what the initial trigger. One study from Israel showed no definite cases of recurrent GBS in those who had suffered GBS in the past following COVID vaccination. Hope that is clear.


    • Gareth Parry

      Keymaster

    • #3548

      Hi Dawson: Yes, one definitely can make a full recovery from GBS. About 70% of patients recover full strength although some people do notice persistent fatigue. Unfortunately, recovery can be slow, taking up to 2 years. Pain also improves, in most cases completely. You are very early in the recovery phase, just 3 months from the initial illness, so it is not surprising that you still have some weakness and pain. You had the correct treatment (IV immunoglobulin) and are continuing to get physoiotherapy treatment so you are doing everything right. Keep it up and I would expect that you will continue on the road to recovery, hopefully complete recovery.


    • Gareth Parry

      Keymaster

    • #3537

      I am as much in the dark as you are. The government has not yet released the criteria determining who will be eligible or when. I should mention that people who have had GBS are not immunocompromised and people with CIDP are only immune compromised if they are on active treatment with immunosuppressive drgus such as steroids, azathioprine (Imuran), cyclophosphamide (Cytoxan) and others. If they are not currently receiving any treatment or are being treated with immune globulin they will not be immunocompromised.

      in reply to: 2nd Booster
Viewing 5 posts - 1 through 5 (of 50 total)