Hello world!

I apologise for my tardy response; your message went to my SPAM box. The GBS/CIDP Foundation International states that most vaccinations, including COVID and influenza, are safe in individuals who have had GBS with the following exceptions:
1. In the first 12 months following GBS no matter what the triggering event was.
2. If the original GBS attack occurred within 6 weeks of receiving any vaccine, that particular vaccine should be avoided. Thus, if your original GBS occurred within 6 weeks of receiving a COVID vaccination your should avoid that particular vaccine in the future. I am not certain from reading your message exactly when your GBS occurred in relation to the 4th COVID vaccine but if it was more than 6 weeks it is extremely unlikely that the vaccine was the trigger.
I cannot give advice regarding the treatment of individual patients but in general, the benefit of vaccines far outweights any risk. It is essential that you discuss these issues with your doctor before making a decision.

Firstly, there are no reports of the antiviral medication triggering GBS. Secondly, there is nothing about the medication that would make me expect it to be able to trigger GBS. And, thirdly and most importantly, because GBS is an immune illness the disease doesn’t come on until 10-20 days after the triggering event whereas your GBS came on 24 hours after taking the medication. So we can be confident that in your case the medicationn did not trigger your GBS.

Hi Shane: Sorry to hear you are having such a difficult time. Intermittent tingling and a sense of overwhelming fatigue do occur quite commonly after GBS, even when strength has recovered. It is a bit unusual for things to fluctuate so much with some near-normal days and others where you are seriously affected but I think it is most likely that what you are experiencing now is the result of that previous GBS. A much more difficult question is what can be done about it. Unfortunately, not much. I am going to ask my colleague, Dr Suzie Mudge to give you some advice about the fatigue management. Otherwise, it is just a matter of being patient. You are not yet a year out from your GBS attack and improvement is going to continue. It may take 2 years or even more before you get maximal recovery. I don’t know where you live but getting hooked up with a local support group can really help by seeing that others have had similar experiences and have come through it eventually. Gareth

Dear Sir: I am not sure what it is that you need help with. If you had GBS in 2022 there is no treatment that would help at this stage. If you continue to have problems it may be because you are one of the 20%-30% of GBS patients who have incomplete recovery or it is possible that you have a related disease called CIDP which would require specific treatment. If you could give me more details about how GBS affected you< what treatment you received (if any) and what difficulties you are having I may be able to give you some advice.