My name is Lawrence, I am 27 years old, and I live in Romania.
I have been diagnosed with Miller-Fisher syndrome (cranial variant of GBS) twice: July of 2015, and July of 2019.
The first occurrence was significantly more drastic, but after undergoing immunoglobulin treatment, I made a full recovery by November 2015.
The second time, it was milder; I was quicker to notice the familiar symptoms, and I managed to shake them off without immunoglobulin treatment.
My question is, how normal is it for me to feel generally weaker, and less resilient to effort? I do not mean numbness, but a general feeling of lack of strength, as compared to before.
While this may not be life-changing, I was wondering if your experience could help me get a better understanding as well.
Last of all, I want to commend you for your initiative to provide a support framework for people who have suffered from this uncommon disease. I know it’s tough to feel like you’re the least lucky person in a 100 km radius for having suffered from something like this.
Keep up the good work, everyone!