My first neurologist thinks I have CIDP and had referred me to another Neurologost who specializes in peripheral neuromuscular disorders. In the morning time, I have found my peripheral neuropathy and weakness in my left hip , quad, and top knee feels better when I first wake up. After moving around for about 30 minutes, it begins to feel weaker. The end of day is worse.
Hi Mary: Weakness in CIDP can fluctuate a little but it does not typically have this pattern of being consistently better in the morning and then worsening as the day progresses. That pattern is more reminiscent of a disease called myasthenia gravis or, less likely, a rare condition called Lambert-Eaton myasthenic syndrome. You should make sure your neurologist is aware of the pattern of the weakness and that these conditions have been considered. Since you have already seen a neuromuscular specialist I am sure that they have but it doesn’t hurt to ask.