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This is a very strange symptom that I have not encountered previously.. CIDP does not affect the tongue but it seems that this symptom comes and goes along with the return and resolution of your other CIDP symptoms. I regret that I cannot give you any advice about this annoying symptom excet to say it is unlikely to be harmful. You should discuss it with your neurologist. Gareth Parry
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Hi Jay: Let me address your last question first. Miller Fisher Syndrome (MFS) should only affect the eyes and perhaps a little bit the face and throat. When you ask whether it affects one side more than another I read that to mean that you have involvement of the limbs. If that is the case you don’t have MFS. Regular GBS can affect the face and eyes but MFS should not affect the limbs. Let’s leave it at that for now until you have come back with more detail on how your disease had affected you. That will give me more guidance on how to answer your other questions.
in reply to: Recovery expectations
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