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- I was diagnosed with CIDP in 2018 with Gareth Parry and Dr David Abene
- I was diagnosed with CIDP in 2018 with Gareth Parry and Dr David Abenethy.
- I was diagnosed with CIDP in 2018 with Gareth Parry and Dr David Abenethy.
- I was diagnosed with CIDP in 2018 with Gareth Parry and Dr David Abenethy.
- How to get diagnosis
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August 6, 2021 at 12:30 pm
Gareth ParryKeymaster -
I have recently learned from Tony Pearson that you recently had GBS. It would be quite unusual to have sensory symptoms of this kind in the back as a result of GBS. They can certainly occur in the limbs and I guess it is possible that they could also occur elsewhere. The “buzzing” symptoms can occur following GBS and probably are related to the nerves recovering so are a good sign. If the symptoms are from the GBS, topical lotions will not help. If the symptoms are distressing medication such as nortriptyline, gabapentin or pregabalin can help so you should talk to your doctor about that possibility.
in reply to: I have pins and needles/ itchy in my back
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August 5, 2021 at 9:23 pm
Gareth ParryKeymaster -
Hi there: You don’t mention whether you have GBS or CIDP. If you had GBS, when did you have it? Let me know that information and I will try to answer your questions.
Garethin reply to: I have pins and needles/ itchy in my back
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June 28, 2021 at 8:36 pm
Gareth ParryKeymaster -
Hi: Without the details about your son’s illness I cannot say if he has CIDP. I can say that the symptoms of CIDP are very non-specific and many other illnesses can have similar symptoms. If you would send a brief outline of his history and his complaints I will endeavour to address whether he has CIDP. Gareth
in reply to: Does my son have CIDP?
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May 19, 2021 at 8:41 am
Gareth ParryKeymaster -
I am copying my recent answer to the same question. Nothing in life is 100% free of risk but this vaccine is one of the safest ever developed.
So far there have been more than 1.1 billion doses of COVID vaccine administered worldwide and there have been perhaps 2 cases of new GBS and no cases of recurrence of prior GBS. By contrast, there have been dozens of cases of GBS following COVID infecti0n. Thus, we can say that the risk from getting the vaccine is tiny (about 1 in 1 billion) while the risk of getting GBS with COVID is much higher and the risk of dying from COVID very much higher so I recommend getting the vaccination.
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May 15, 2021 at 2:07 pm
Gareth ParryKeymaster -
Hi Diane: So far there have been more than 1.1 billion doses of COVID vaccine administered worldwide and there has not been a single case of new GBS or recurrence of prior GBS. By contrast, there have been dozens of cases of GBS following COVID infecti0n. Thus, we can say that the risk to your husband from getting the vaccine is tiny (less than 1 in 1 billion) while the risk of getting GBS with COVID is much higher and the risk of dying from COVID very much higher so I recommend getting the vaccination.
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