My wife experienced gillain barre late 2018 and still notices tender nerves in her legs, generally not causing any problems. She has recently developed 6th nerve palsy and we are wondering if there could be a link to GBS that has caused this latest issue?
Hmm! This is a bit odd. It is possible that it is unrelated. For example, if she is diabetic this new problem could be related to diabetes. However, when 2 neurological problems occur close to each other temporally one doesn’t like to invoke an unrelated condition. The 2nd possibility is that she has CIDP rather than GBS and that this 6th nerve palsy represents her first relapse of what is going to be a chronic condition. However, cranial nerves are rarely affected in CIDP. The 3rd possibility is that she has a very rare condition called CANOMAD which can present initially looking very much like GBS but then relapses. In CANOMAD damage to the ocular nerves is common, that is what the “O” stands for. There is a specific antibody test that can be done to look for that; it has to be sent overseas but it is certainly worth considering that possibility. Regardless of which of these it is you need to get back to see a neurologist. There is simply not enough information for me to be able to tell what is going on. If it is an unrelated condition there is not much to worry about because almost all 6th nerve palsies get better but if it is CIDP or CANOMAD the condition will need specific and probably long term treatment. Please take this information to your GP and get a referral to a neurologist, hopefully the one who saw you for the initial GBS.