The group has available a number of booklets, detailed below, which are available free of charge to interested parties.
Guides to Download
How You Can Manage Faitgue
What is CIDP
A guide for patients, relatives and friends.
What is GBS
A handbook for caregivers.
After GBS
Information for patients recovering from GBS
Peripheral Nerve Disorders
An explanation for patients, relatives and friends.
Intensive Care
Guidelines For Medical Professionals
Further Information
The Group also has available CD guides, again free of charge, explaining GBS and CIDP. We are grateful for the assistance given by the UK GBS Support Group and the GBS/CIDP Foundation International for the use of their material and permission to distribute the literature in New Zealand. A number of books have been written by former GBS sufferers including
Guillain–Barré Syndrome: From Diagnosis to Recovery
Written by our own medical advisor Dr Gareth Parry and his colleague Joel Steinberg.
This can be purchased here:
A review of the book appears in the September 2007 Newsletter.
No Laughing Matter by Joseph Heller and Speed Vogel
Bed No. 10 by Sue Baier and Mary Zimmeth Schamaker
A First Step by Brian S Langton
Learning to Walk Again by Anne K Brandt
Numb Toes and Aching Soles: Coping with Peripheral Neuropathy by John A Senneff
The Darkness is not Dark by Regina R Roth
Up from the Abyss by Italo Giovanni
The “Official” Patients Sourcebook of Guillain Barré Syndrome by Ikon Health Publications
Most are of these are available from Amazon.com.
GBS – An Overview for the Lay Person by J.S. Steinberg
Caring for a Child with GBS by P. Schard
Both available from GBS/CIDP Foundation International.
Perhaps the most useful book, and certainly the most recent, detailing the issues associated with GBS and CIDP is
